Our vision is a world where no one suffers from the devastating genetic skin condition Epidermolysis Bullosa (EB).
People living with EB are often described as having skin as fragile as a butterfly’s wings. In its most severe forms, EB is fatal; even in its mildest forms it can cause lifelong disability and pain. Blisters continuously form and have to be drained and dressed daily, the build-up of scar tissue can cause fingers and toes to fuse together, and it can mean a higher risk of developing skin cancer. It is currently incurable.
DEBRA is the charity providing lifelong support and care for people with EB while pioneering a programme of ground-breaking research to find treatments for the devastating symptoms that affect people with EB and, one day, a cure.
You can help support our work by visiting one of our DEBRA charity shops, by donating, or by joining one of our events. Let us all take one small action to fight EB so that, one day, EB no longer has any fight left to give.
Click here https://www.debra.org.uk to find out more.
DEBRA is registered as a Charity in England and Wales (1084958) and Scotland (SC039654)